In just over two weeks, we will hit our first big milestone. Well, my first milestone that matters to me. There have been lots of firsts. First time taking chemo. Boy, was I nervous. First time doing radiation. The first biopsy that started me on this path. Big firsts. Relief when it was over and […]
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The Quiet Thinking Place & The Power of Friendship
My sleep pattern has definitely changed since this journey started. A mix of side effects and normal anxiety. GBM is on my mind 24/7 and it does keep me up at night. I’ve also had some really interesting dreams in the past 10 months. So I tend to get up a few times during the […]
Week 33 Check-in
So much has been happening in the past few weeks. There’s been a little back and forth with doctors, some extreme fatigue along with some pretty bad headaches. Most of this is due to swelling in my brain that is going across the hemispheres. So it’s literally in the center of my brain. One side […]
Love CAN Move Mountains
After weeks of frustration, and waiting, I found a PET scan imaging facility who will let me pay out of pocket for my Brain/PET scan. I found them on the American Cancer Society website. They are charging a little more than the first place, but they can do the scan this week. Hallelujah! Progress. Light […]
Another Milestone & Taking the High Road
The moment I’ve been preparing for and it still happened when I least expected it. LOL But let me roll back a few days into Week 11. Last Friday, October 20th I wrote about starting CyberKnife sessions. Today was session #6 and my last. I had a few ups and downs. The sessions left me […]