While Hurricane Irma edged closer and closer, I worried more about my treatment being interrupted and how long it would take for things to get back to normal after she passed. Well, here we are a few days later. My treatments are going to be fine as long as I’m flexible. (Another life lesson here… things may not go as planned but that doesn’t mean you won’t get to your destination. Don’t sweat the how.)
So on Friday when I went for my treatment, the staff let me know that they would be closed on Monday and to call in on Tuesday. So this morning, Tuesday, September 12th I called early this morning to find out what was happening. They were in the midst of trying to get operations started again. They were busy trying to contact all of the patients to give them an update. A little while later they called me to ask if I would be willing to go to the main Cancer Institute out in Hollywood at Memorial Regional. Well of course! My main goal is to get my treatments back on track. With an aggressive GBM, every day is important. I got the time confirmed and woke up the little one (my daughter) to drive me over there.
Then I thought, “Oh no, what about my mask?” “Do I need to pick it up?” I called the Memorial Cancer Institute here, “Don’t worry, we already sent your mask over there for you.” Whew! I keep forgetting how truly remarkable this team is. They are as dedicated as I am to keep my treatment on course.
I did find out yesterday that my insurance company denied coverage for the Optune cap. The company that makes the cap is going to appeal it and hopefully we get it worked it before I actually need it in a few weeks. In the meantime, we’re cleaning up the leaves and small branches that Irma left behind. Our house suffered little damage. We had a small leak in the floor of a bedroom and lots of small debris laying around. We only lost power for what seemed a minute. Before I could get a flashlight out, it came back on.
I would say someone upstairs is looking out for us, but I always felt that way. We’re so blessed and I am in gratitude for being safe during the storm, and the ability to get back on track with my treatment. I know in the coming days things will only get better. I’m just so grateful we didn’t have 185 mph winds visit us. I can’t even imagine what things would look like today.
I have been losing more hair in the past few days and my light-headed vertigo thing is showing up more often. But that might just be from the storm. Today seems better and we’re going to venture out and try to get some groceries and gas. But first, time to fire up the iPod for my treatment and the beginning of Week #5.